Craniofacial Abnormalities and Craniosynostosis

Support and Therapy Services

doctor holding child

At NewYork-Presbyterian, the care of young patients with craniofacial disorders is provided in a family-centered environment by dedicated interdisciplinary teams of surgeons, pediatricians, dentists and other oral care specialists, nurses, audiologists, speech and language therapists, feeding therapists, occupational therapists, geneticists, social workers, and child life specialists. In addition to craniofacial surgery, we provide the following services as needed as part of your child's care plan:

Speech and Language Therapy

  • Our specially trained speech and language pathologists assess and treat children with speech, voice, and swallowing issues related to craniofacial or oral cavity disorders.
  • They participate in the decision-making process for the scheduling of surgeries and provide guidance regarding speech services that your child may need at home or at school.
  • Our speech pathologists assess your child's speech skills and the pronunciation of certain consonants and vowels. They collaborate with otolaryngologists (ear/nose/throat doctors) and reconstructive surgeons to identify ways to improve your child's speech.

Educational Support

  • Our educational advocates are available to ensure the appropriate services are in place for your child and when applicable, your child’s individualized educational plan (IEP).

Hearing Care (Audiology)

  • Hearing difficulties and middle ear dysfunction often occur in infants and children with craniofacial abnormalities. We can assess your child's auditory system and pathways at any age.
  • Our specially trained audiologists perform tests such as otoacoustic emissions; auditory brainstem response testing; behavioral audiologic evaluations, including visual reinforcement audiometry; and hearing aid evaluations and fittings.

Feeding Support

  • Our feeding therapists are available to ensure that your child is able to take in adequate nutrition and swallow food or liquid safely, without complications such as pneumonia or other medical issues.
  • Our therapists work closely with you to identify the best way to feed your child, teaching you feeding techniques and advising you how to select a bottle so your infant can take in enough nutrition and drink without discomfort.
  • They also provide treatment if your child has muscle weakness or an aversion to certain types of food because of an early-life experience.

Dentistry and Oral Care

The treatment of children with craniofacial deformities requires specialists in pediatric dentistry, orthodontics and dentofacial orthopedics, and maxillofacial prosthodontics.

  • Dental Care: Our pediatric dentists are available to closely follow children with clefts and craniofacial conditions. Comprehensive dental care is an integrated part of your child's overall rehabilitation.
  • Orthodontic Care: Orthodontists may be involved in the care of your child from several years of age until age 18 or 19, or until all surgeries are complete to monitor craniofacial growth and development; and to monitor the success of a bone graft or other procedures.
  • Prosthodontic Care: We provide prosthetic appliances to support feeding or speech if your child has cleft palate, and to replace or restore oral and facial structures. Our prosthodontists also perform presurgical procedures such as nasoalveolar molding (NAM), which expands the palate and prepares your child's bite to ensure stability after surgery and to correct jaw discrepancies and dental arches before cleft lip and palate surgery.

Genetic Counseling and Testing

  • We provide prenatal, pediatric, and adult diagnostic testing for birth defects and/or genetic conditions. Genetic counseling is an integral component of the program, including discussion of genetic risks for future children. Our team includes clinical geneticists, genetic counselors, and support staff.
  • Our geneticists also provide reproductive counseling for parents of affected children and for adolescents with clefts and congenital conditions who are reaching the age of reproductive awareness.

Social Work Support

  • We can connect you with resources and services and facilitate medical, dental, and surgical care for your child. We can also help you adjust to the birth of a child with a facial deformity or a change in your child's appearance due to trauma or disease.

Contact us

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NewYork-Presbyterian Morgan Stanley Children's Hospital

NewYork-Presbyterian Komansky Children's Hospital