Family Advisory Council

NewYork-Presbyterian Komansky Children's Hospital

Family Advisory Council

Programs

Parent-to-Parent Mentoring Program

Our Parent-to-Parent Mentoring Program (P2P) is a patient- and family-centered care service that matches parents or caregivers of children who are being or have been cared for at the hospital with a trained veteran NewYork-Presbyterian Komansky Children’s Hospital parent. Peer mentors are Family Advisory Council members and are committed to confidentiality under HIPAA. Since parents and caregivers share many common experiences, the P2P match offers a unique form of support. This differs from the support found in large groups because it is strictly one-to-one.

Also, while professional support can be very helpful, many times parents and caregivers wish they also could talk to someone who found themselves in a similar situation. For this reason, P2P mentors are in an exceptional position to extend support to others facing a comparable diagnosis.

FAC member speaking about P2P.

How does the program work?

Through a unique and secure phone line, family members have the opportunity to share their experiences and obtain valuable information from someone who has “been there”. Patients, parents, and caregivers are matched with a peer mentor based on diagnosis, as well as other factors, which encourage a mutual understanding and ease of communication.

Enrolling in P2P

If you are interested in enrolling in P2P, speak to your care team, social worker, or child life specialist and a member of our team will reach out to you. This service is free.

If you would like more information about P2P, please email or call:

Mariela Guerra
Family Advisory Council Program Coordinator
[email protected]
(212) 746-6007

Simulation-Based Discharge Program

FAC staff member with child

PARENT LEARNING SDP WITH HIGH-FIDELITY SIMULATION MANIKIN

Preparing to go home after your child’s stay at the hospital may be complex, daunting, and stressful, particularly if your child has a medical device. We hope to make the transition more comfortable by giving you the knowledge and confidence to look after your child’s new medical devices at home. Simulation training helps you to provide the best care for your child after you return home.

At NewYork-Presbyterian Komansky Children’s Hospital, we understand the challenges of looking after your child when a medical device is needed upon discharge from the hospital. Our team has created an innovative program to help families and caregivers of children with medical devices prepare for discharge through the use of a medical simulation manikin. Our aim is to help you feel more comfortable and confident in caring for your child with a medical device. 

What are medical simulation programs?

Medical simulation programs are widely employed in the medical field to help healthcare professionals practice skills and prepare for circumstances they may rarely encounter. Our team has incorporated the same technology and expertise found in our world-class Simulation Center to create a program for parents and caregivers.

How does the program work?

Our program uses an advanced realistic simulation manikin to teach the skills and provide the knowledge necessary to help you look after your child’s medical device. Guided by our experts, the simulation manikin lets you learn at your own pace and practice as many times as you wish until you are comfortable.  Throughout the program, you will be supported by trained parent volunteers from the Family Advisory Council who will provide a family-based perspective and level of experience.

I wanted to send a very belated thank you for the training at NYP — it was one of the most valuable things we learned in the last 7 months and we've felt much more confident in her care since then.
You were so positive and confident on the simulation call, it made a difference in how I felt about it and that we could do this too.
We were nervous about taking care of our child at home following her surgery, and the hands-on simulation discharge program was tremendously helpful in building our confidence.

A parent-to-parent telephone support network offers you direct support for up to six months following hospital discharge. The network is comprised of parents and caregivers whose children have had one or more medical devices and have volunteered to support other parents and caregivers of children with a newly placed device. 

This program will enhance and complement the existing patient education material you will receive from your child’s care team. It has been developed in consultation with your surgeons, critical care specialists, and nurses to ensure the best practice in care.

Contact us at:

[email protected]

This program is free and provided in addition to all the other support and discharge services offered by our hospital.

Parents using SDP skills with their child

Parents using SDP skills with their child