2024 Health Justice Research Grants
Development and Evaluation of an Informatics-Based Approach to Reducing Disparities in Kidney Transplant Evaluation Completion in a Learning Health System
Syed Ali Husain, MD, MPH, MA, FASN (CUIMC); Harry Reyes Nieva, PhD, MAS (CUIMC); Karthik Natarajan, PhD (NYP); Sumit Mohan, MD, MPH, FASN (CUIMC); Miko Yu, MPH (CUIMC)
Kidney transplantation offers better survival, quality of life, and long-term cost benefits compared to dialysis, yet most end-stage kidney disease patients in the U.S. never get waitlisted for a transplant. Disadvantaged groups, including minorities, women, and those with lower education and socioeconomic status, face even lower waitlisting rates. A crucial step in improving equity is facilitating timely completion of kidney transplant evaluations (KTEs), which are necessary for determining eligibility for the waiting list. KTEs are complex, often requiring over ten visits, and there are significant disparities in completion rates. This project aims to use machine learning to identify candidates at risk of delayed or incomplete KTEs. The team will develop integrated checklists and dashboards in electronic medical records to enable early intervention, thus optimizing pre-transplant resources and enhancing equity in KTE completion.
Emergency Department Discharge Redesign: A Patient-Centered Design Process, Prioritizing Inclusivity and Equity for Optimized Post-ED Care Transitions
Lynn Jiang, MD (WCMC); Peter A.D. Steel, MA, MBBS, FACEP (WCMC); Natalie Benda, PhD (CUIMC); Radhika Sundararajan, MD, PhD (WCMC)
Each year, over 80% of emergency department (ED) visits end with patients being discharged home. This transition is critical, as patients must understand discharge instructions and adhere to post-ED care plans. However, current discharge processes often fall short, leading to unplanned revisits and hospitalizations, especially for vulnerable limited-English proficiency (LEP) patients who face unique barriers to health care access and health literacy.
Transforming the ED discharge process is essential for improving safety and health equity in post-ED outcomes. This project will use inclusive, participatory design and implementation mapping to create a patient-centered discharge process. The team will engage recently discharged ED patients and frontline providers to redesign the current system and assess the new process's impact on clinical outcomes. Their long-term goal is to enhance the quality of ED discharges and improve equity in post-ED outcomes, particularly for LEP populations.
Integration of oncology patient-reported Social and financial needs In a learninG Health SysTem (INSIGHT)
Melissa Beauchemin, PhD (CUIMC); Claire Sathe, MD, JD (CUIMC); Dave Destephano, MPH (CUIMC); Rhea Khurana, BS (CUIMC); Nat Benda, PhD (CUIMC); Justine Kahn, MD, MPH (CUIMC); Melissa Accordino, MD, MS (CUIMC); Dawn Hershman, MD, MS (CUIMC); Shoshana Rosenberg, ScD (WCMC); Laura Pinheiro, PhD, MPH (WCMC)
This project aims to improve technology-based screening for unmet health-related social needs (HRSNs) among cancer treatment patients. The team will use a learning health system (LHS) approach to identify patients with unmet needs and connect them to appropriate interventions and community resources. They will expand an electronic dashboard to organize HRSN screening data across the NewYork-Presbyterian system and use mixed methods to explore patient and caregiver perceptions of HRSN screening and access to interventions. Ultimately, the goal is to enhance equitable cancer care delivery and improve health outcomes.
Goals of Care Communication for Primary Care (GOComm-PC): Empowering Seriously Ill Patients by Teaching Culturally Responsive Communications Skills
Cynthia X Pan MD (PI) (WC, NYPQ); Kimberly Bloom-Feshbach MD. (WC); Melissa Patterson MD (CUIMC); Milagros D. Silva MD (WC); Andrea Card, MD (WC); Robyn Winsor, MD (CUIMC); Kerrianne P. Page, MD (CUIMC)
In the U.S., hospice care is significantly underutilized by racial and ethnic underrepresented groups and individuals with low English proficiency. To address these disparities, the GOComm-PC initiative will engage the community to develop patient-centered programs. Building on successful goals of care communication training for inpatient clinicians, the initiative will adapt this training for primary care, emphasizing culturally responsive skills to improve hospice utilization among underrepresented groups.
By integrating these discussions into routine ambulatory care, GOComm-PC aims to empower patients to understand advance care planning and hospice options, facilitating shared decision-making that aligns with their values. This initiative will prepare clinicians for meaningful conversations about medical decisions, supporting NewYork-Presbyterian Medical Group’s objectives for Medicare Annual Wellness Visits and increasing appropriate hospice use.
Achieving Equity in Stroke Rehabilitation Through Use of a Decision Support Tool
Joel Stein, MD; Robin Hedeman, OTR/L; Steven Levine, MD; Zainab Magdon-Ismail, DrPh; Barry Rodstein, MD, MPH; Alyse Sicklick, MD; Brian Silver, MD; Akinpelumi "Akin" Beckley, MD, MBA; Leroy Lindsay, MD; Jason Edwards, DO; Nasim Chowdhury, MD; Ken Yeung, PhD
Stroke is the fifth leading cause of death in the U.S. and a major cause of disability, especially for Black and Hispanic patients and those living in low-income areas, largely due to inadequate access to rehabilitation care. While stroke patients needing rehabilitation can receive care at specialized inpatient rehabilitation facilities, strict insurance eligibility rules often divert vulnerable groups to nursing homes instead, where recovery rates are lower.
To tackle this problem, the Dalio Center is funding Dr. Joel Stein and his team, who have created the Stroke Post-Acute Discharge Decision Support Tool. Dr. Stein is the physiatrist-in-chief at NewYork-Presbyterian, as well as professor and chair of the Department of Rehabilitation Medicine at the Columbia University Vagelos College of Physicians and Surgeons, and professor and chair of the Department of Rehabilitation Medicine at Weill Cornell Medicine. His team aims to reduce disparities in care and improve recovery outcomes by enhancing the existing decision support tool. They will do so through the incorporation of expert opinion, an assessment of its use in the clinical care setting, and an evaluation of results disaggregated by race and payor status.