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Pediatric Marfan Program

Marfan syndrome is a genetic disorder affecting the body’s connective tissue — an essential tissue that provides the body with cohesion, flexibility, strength, and support. People with Marfan syndrome have a deficient supply of the fibrillin protein of the connective tissue, which is responsible for the health of elastic fibers. Without this protein, problems with the lungs, eyes, spinal cord, blood vessels, heart, cartilage, and joints occur.

Because the symptoms of Marfan syndrome can worsen over time, it’s vital to receive accurate and early diagnosis and treatment. NewYork-Presbyterian Morgan Stanley Children’s Hospital, in collaboration with ColumbiaDoctors at Columbia University Irving Medical Center, provides comprehensive care to children with Marfan syndrome and other connective tissue disorders. This program offers children and their families access to an elite medical team comprised of nearly every discipline of pediatric medicine that is centralized to help coordinate care among all services.

Our Approach to Marfan Syndrome

Marfan syndrome cannot be cured. But with proper diagnosis and management, patients with this condition can live a long, full life. Recognized as an official Pediatric Marfan Center by the Marfan Foundation, the Pediatric Marfan Program at NewYork-Presbyterian Morgan Stanley Children’s Hospital provides exceptional multidisciplinary care. The program and administrative support staff are contained within the Division of Pediatric Cardiology and Cardiovascular Surgery, which allows our team to coordinate appropriate medical and surgical care.

Referrals & Appointments

For 12 consecutive years, U.S News & World Reports has ranked NewYork-Presbyterian in more pediatric specialties than any other children’s hospital in the New York metropolitan area. We’ve consistently earned this high honor because of our dedication to providing children and their families the highest quality care.

Refer a patient

To refer a patient to the Pediatric Marfan Program, please contact Kathleen Gilmartin, program coordinator, at 212-342-1562 or via email at kg2764@cumc.columbia.edu.

Schedule an appointment today

To schedule an appointment or get additional information about the Pediatric Marfan Program, please contact Kathleen Gilmartin at 212-342-1562 or via email at kg2764@cumc.columbia.edu.