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Programs & Initiatives

Developing and expanding several institutional projects designed to identify and address health disparities

Prevention and Education in Advanced Kidney Disease

Disparities in kidney disease are well documented: End Stage Kidney Disease (ESKD) disproportionately affects those with low socioeconomic status, Black race, Hispanic ethnicity, homelessness and housing insecurity.

The Dalio Center has grant funded the Rogosin Institute to expand the Prevention and Education in Advanced Kidney Disease (PEAK) to the NYP Columbia University and Allen Hospital. The program includes support for a collaborative, bilingual team of physicians, nurse educators, social workers, dietitians, and peer mentors, as well as analytic support to track the impact of our program.

Key Achievements in 2022

  • Worked collaboratively with Rogosin and ColumbiaDoctors to create a plan and process for expanding PEAK
  • Established a set of evaluation metrics to monitor program success
  • Kicked off the new PEAK program in Q4 2022

Comprehensive Sickle Cell Disease Program

Sickle Cell Disease is a genetic blood disorder that affects approximately 100,000 Americans (~10,000 New York State residents), predominantly Black and Latino Americans. Although there have been significant milestones achieved in the last 5 years, research continues to be underfunded in comparison to similar genetic disorders, and mortality has not significantly improved in the last 40 years. The Dalio Center has chosen to focus on this chronic disease in an effort to improve patient experience and access to care, provide resources to patients, families, and providers, and create innovative programs to allow for highest quality of care for this patient population. NewYork-Presbyterian delivers care to over 1,100 patients annually and provides innovative therapies like stem cell transplantation and gene therapy. Our new enterprise-wide program expands on this innovative, compassionate, patient-centered care by focusing on three main areas: clinical care optimization, transition from pediatric to adult care, and education and resources.

Over

1,100
SCD patients across NewYork-Presbyterian

Key Accomplishments in 2022

Clinical Care Optimization

  • Developed longitudinal care plans in the electronic medical record system to ensure continuity of care for sickle cell patients across the enterprise
  • Invested over $300,000 to build sickle cell-specific patient registries, which will help clinicians easily monitor patient health maintenance measures

Education and Resources

  • Created new patient-focused education including two videos and a pamphlet describing sickle cell anemia, treatment, and disease management and launched a new website
  • Hosted several symposia and patient-centered events, including a continuing education day for healthcare workers focused on sickle cell awareness

Pediatric to Adult Transition

  • Hired full-time dedicated staff including two transition coordinators to assist patients with the coordinated and seamless transition from pediatric to adult hematologic care
  • Built Got Transition® surveys in the electronic medical record system for more effective readiness assessment for transition
  • Established a partnership with Valera Health, a third-party mental health provider, to create peer support groups and psychoeducational content for patients in the transition age
Quote 1

The history of this country is not about getting wealthy or getting out of poverty. It’s more about how there’s always more to know in our racial stories; how much we don’t know about each other’s stories. And in many respects how much we need to tell our own stories.

Howard Stevenson, PhD, Constance Clayton Professor of Urban Education, Professor of Africana Studies, in the Human Development & Quantitative Methods Division of the Graduate School of Education at the University of Pennsylvania

Crown Hair Care Program

To address an identified gap in hair care products offered at NYP, the Crown Hair Care Program was created to diversify products available for curly and tightly coiled hair textures. In 2021, the program was piloted at NYP/Weill Cornell and in 2022, it was expanded to NYP Brooklyn Methodist Hospital. The Dalio Center built a relationship with Carol’s Daughter, a Black- and woman-led company owned by L’Oreal. Through this relationship, NYP participated in community events hosted by Carol’s Daughter and Carol’s Daughter has donated close to 3,000 products to our patients and community members.

Key Achievements in 2022

  • 3,000 products donated from Carol’s Daughter
  • 400 kits created for distribution at NYP-BMH beginning December 2022
  • 500 packs of diapers and wipes donated at Carol’s Daughter Bump Day
3,000
products donated by Carol’s Daughter to our patients and
community members

Northern Manhattan Early Childhood Collaborative

The Dalio Center awarded a grant to the Division of Community and Population Health for the Northern Manhattan Early Childhood Collaborative (NMECC). This multisector collaborative works to ensure that all families with young children in Northern Manhattan can embark upon lifelong trajectories of well-being—physical, social emotional, and educational. Utilizing a community health model, NMECC draws on the expertise, strengths, and mission of each organization to better streamline systems, identify gaps, provide support, and serve those in need.

155
respondents to the community survey to
determine population health and resource
needs in Northern Manhattan

Key Accomplishments in 2022

  • Identified a CBO partner, Literacy Inc, to co-lead the collaborative
  • Surveyed the early childhood community of Northern Manhattan to determine population health and resource needs and identified Early Intervention as the top priority area
  • Created a working group of CBOs in Northern Manhattan
  • Created a caregiver advisory group to shape NMECC direction and strengthen grassroots efforts
  • Provided resources and connections to Northern Manhattan CBOs
Quote 1

We believe that access to equal quality healthcare and education are the most fundamental necessities of a just and well-running society.

Ray Dalio, MBA, NewYork-Presbyterian Board of Trustees and Founder of the Bridgewater Board

Community Initiatives

In close collaboration with NYP Brooklyn Methodist Hospital, the Division of Community and Population Health, and the NYP’s Government & Community Affairs team, the Dalio Center has been working with community-based organizations (CBOs) in Central Brooklyn to create a set of community-informed health programs focused on maternal and child health. The Dalio Center’s first project in Central Brooklyn—Community Conversations and Celebrations—was launched in 2022. Together with local CBOs including CAMBA, Caribbean Women’s Health Association, YMCA, and Brooklyn Children’s Museum, the Dalio Center collected and uplifted local stories about motherhood during the pandemic. These stories, called Community Conversations, were documented on film and showcased at our Community Celebrations event. This event was an opportunity for the community to join together and hear stories from neighbors and friends. To learn more and watch the full video, visit this link.

Key Achievements in 2022

  • Held our first annual Community Celebration with over 700 community members in attendance
  • Produced a documentary highlighting motherhood during the pandemic
  • Distributed 150 books sourced from Café con Libros, an Afro-Latinx, Womxn-Owned Intersectional Feminist community bookstore, at our Community Celebration

Next up

Supporting clinical and health services research aligned with our mission and vision