Support & Education
The team at NewYork-Presbyterian Morgan Stanley Children's Hospital educates parents and children about sickle cell disease and what they can do to maintain their health. Support is available from a variety of specialists with experience caring for patients with sickle cell disease, including:
- Child life specialists, who help minimize the stress of the hospital experience for patients, siblings, and families.
- Teachers, who provide educational instruction to children while they are in the hospital so they do not fall behind in school.
- Interpreters for families whose first language is not English.
- Social workers and psychologists for patients, bone marrow donors, siblings, and other family members.
- Fertility specialists for some children scheduled to undergo transplantation.
- Genetic counselors for people with sickle cell trait, in which a person carries only one copy of the sickle cell gene. (Both copies are needed for a person to have sickle cell disease.) People who have sickle cell trait and who are planning to have children may wish to meet with a genetic counselor, who can help explain the choices available to them. To make an appointment with a genetic counselor at NewYork-Presbyterian/Columbia University Irving Medical Center, call 212-305-6731.
Charna's Kids' Club offers recreational activities for siblings of children who are in the hospital. This program is designed to minimize the anxiety and stress associated with having a brother or sister who is ill. For more information, call 212-342-8579.