A normal heart has two ventricles which pump blood out of the heart. In children with single ventricle defects, one of these chambers is missing or is too small to function properly. Examples include hypoplastic left heart syndrome, tricuspid atresia, pulmonary atresia, and double-outlet right ventricle. NewYork-Presbyterian/Morgan Stanley Children's Hospital's Center for Single Ventricle Care features a multidisciplinary team of specialists to:
- Manage single ventricle defects, even before birth, using advanced technologies to accurately assess your child's heart anatomy and function.
- Create a roadmap outlining a staged program of care for your child, including a series of corrective surgeries that begin shortly after birth.
- Monitor your child to support health and optimal development until adulthood.
When you come to us for your child's care, you'll benefit from:
- A Team Approach: Your child's healthcare team includes specialists from pediatric cardiology, pediatric heart surgery, neurodevelopment, neonatology (newborn medicine), gastroenterology (digestive care), pulmonology (lung care), nursing, speech and swallowing therapy, social work, nutrition, and child life. Your child can receive all the care he or she needs in one clinic.
- A Program with Proven Success: We have the highest survival rate in New York State for pediatric heart surgery and one of the highest in the United States — even though our surgeons routinely treat some of the most complex cases, with many patients referred from other institutions. For example, the 88 percent survival rate at hospital discharge for babies who had the Norwood surgical procedure at NYP/Morgan Stanley Children's Hospital (2099-2012 data) exceeds the national benchmark for survival of 82.8 percent.
- Superb Prenatal Care: Our renowned Carmen and John Thain Center for Prenatal Pediatrics is one of the world's leading centers for prenatal diagnosis and care. Pediatric cardiologists are members of the prenatal team and are highly experienced at diagnosing congenital heart problems before babies are born.
- Nationally Designated NICU: Our Neonatal Intensive Care Unit (NICU) is a nationally designated Level IIIC NICU. This means we have attained the highest recognition possible in neonatal intensive care, reserved for centers caring for the smallest and sickest newborns and supporting your child's chance of a good outcome. Your baby will receive compassionate, focused care from specialists experienced in the treatment of the tiniest patients with heart disorders.
- Newborn Follow-Up: Our Neonatal Follow-Up Program is committed to making your child's transition home from the NICU as smooth as possible. We assess your child for neurodevelopmental delays or concerns, optimize your child's neurodevelopmental progress, and assist you in obtaining additional services. We'll share a summary of each visit with you, your child's pediatrician, and your Early Intervention Program (if your child is currently enrolled in one).
- Interstage Surveillance: The treatment of single ventricle defects requires a series of surgeries that start when your child is a newborn. A key component of the Center for Single Ventricle Care is the Interstage Surveillance Program, created to track your child's health between the first two surgeries. A team of nurse practitioners who are dedicated to our program will call you weekly and get updates on your child's health status. The nurses can answer any questions you may have and coordinate your child's visits to our clinic.
- A Leader in Heart Transplantation: NYP/Morgan Stanley Children's Hospital has a robust pediatric heart transplantation program, should your child eventually need this surgery. In fact, the world's first successful pediatric heart transplant was performed at Columbia Presbyterian Medical Center in 1984 on a four-year-old boy with complex congenital heart disease. Since then, our surgeons have performed hundreds of heart transplants in children, making our hospital one of the largest pediatric heart transplant centers in the world.
- Transition to Adult Heart Care: As more children survive open heart repairs, they often require additional procedures in adulthood. NewYork-Presbyterian/Columbia University Medical Center is home to the Schneeweiss Adult Congenital Heart Center, one of the oldest centers in the country for the treatment of adult congenital heart disease.