Here's what to expect if your child has been diagnosed with hypoplastic left heart syndrome and you choose NewYork-Presbyterian/Morgan Stanley Children's Hospital for care:
- Your introduction to our services may begin as early as your pregnancy. Our renowned Carmen and John Thain Center for Prenatal Pediatrics is one of the world's leading centers for prenatal diagnosis and care. Or you may have received your child's diagnosis elsewhere and been referred to us for your child's surgery.
- After your child is born, he or she will be admitted to our Neonatal Intensive Care Unit (NICU) for care and close observation.
- Within the first few days of life, your child may have the Norwood procedure as the first stage of surgery.
- Your child will remain in the hospital and will usually be discharged when you and the nursing and medical teams feel that he or she can be safely cared for at home. Near the time of discharge, the Center for Single Ventricle Care team will visit at your baby's bedside to meet with you and create a road map for the months to follow.
- Nurses from our Interstage Surveillance Program will call you weekly to check on your child's health.
- When your child is about 60 days old, you will return to the meet the Single Ventricle team. We will examine your child to make sure he or she is doing well enough to be prepared for the second surgery: the Glenn procedure, usually done between ages 3 and 6 months. During this surgery, the major vein carrying oxygen-poor blood from the top half of the body (the superior vena cava) is connected directly to blood vessels supplying the lungs (pulmonary arteries).
- We'll see your child at regular visits until he or she is ready to have the third operation: the Fontan procedure, usually between ages 18 months and 3 years. The rest of the veins that carry oxygen-poor blood from the body (the inferior vena cava) are connected directly to the blood vessels to the lungs, so the right ventricle no longer has to serve as a pump for both the lungs and the body (only the body).
- Our team will continue to see your child at regular clinic visits to monitor his or her health.