Coordinated Care for Genetic Heart Disorders
The Cardiogenetics Program of NewYork-Presbyterian/Morgan Stanley Children's Hospital provides genetic evaluation and ongoing comprehensive care for children and other family members with known or suspected heart conditions that have a genetic cause. Examples include inherited arrhythmia syndromes (such as long QT syndrome), cardiomyopathy (such as hypertrophic cardiomyopathy), Marfan syndrome, pulmonary hypertension, and congenital heart disease.
- Planning Your Care: Our geneticist and genetic counselor see patients once a week. A typical session begins with a detailed assessment of your medical and family history. Based on this information, we develop a plan for genetic testing and follow up with your family. We assist you with insurance preauthorization for genetic testing and work with your child and family to provide education, support, and counseling during the session and as needed. Your child or other family members may also benefit from enrollment in research studies in cardiac genetics.
- Coordination of Services: We recognize the importance of communicating with your child's cardiologist and other healthcare providers to ensure that his or her care is well coordinated. We can also coordinate your child's heart care with our specialists in electrophysiology, heart failure, pulmonary hypertension, and congenital heart disease.