Support and Education

The team at NewYork-Presbyterian Morgan Stanley Children's Hospital educates parents and children about sickle cell disease and what they can do to maintain their health. Support is available from a variety of specialists with experience caring for patients with sickle cell disease, including:

  • Child life specialists, who help minimize the stress of the hospital experience for patients, siblings, and families.
  • Teachers, who provide educational instruction to children while they are in the hospital so they do not fall behind in school.
  • Interpreters for families whose first language is not English.
  • Social workers and psychologists for patients, bone marrow donors, siblings, and other family members.
  • Fertility specialists for some children scheduled to undergo transplantation.
  • Genetic counselors for people with sickle cell trait, in which a person carries only one copy of the sickle cell gene. (Both copies are needed for a person to have sickle cell disease.) People who have sickle cell trait and who are planning to have children may wish to meet with a genetic counselor, who can help explain the choices available to them. To make an appointment with a genetic counselor at NewYork-Presbyterian/Columbia University Medical Center, call 212-305-6731.

Charna's Kids' Club offers recreational activities for siblings of children who are in the hospital. This program is designed to minimize the anxiety and stress associated with having a brother or sister who is ill. For more information, call 212-342-8579.

Contact

Sickle Cell Transplant Program

212-305-2466

 

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